March 24, 2010

An Open Letter to the FDA

I know it's rare for me to talk about my diabetes on this blog, but this time around I thought it was necessary. For background on what spurred this, see Kerri Sparling and Scott Strumello's blogposts.

I have Type 1, insulin-dependent Diabetes, and rely heavily on my test machine to be 100% accurate 100% of the time. I give myself insulin, eat a snack, exercise, drive my car, and live my daily life based on those results. My husband and I have been married for almost 3 years and we're talking about starting a family within the next few years, but I rely on my test machine to tell me what my blood sugar is doing so I can tweak my insulin pump and alter how much insulin I'm giving myself in order to get my A1C results down to the holy grail of diabetics -- 6.5% -- so I can get the "ok" from my doctor to get pregnant. I'm having an incredibly hard time believing that it's "ok" for my test machine to be +/- 20% on a regular basis, not to mention that on several occasions it's been off more than 20%, which leads me to believe that companies aren't following the policies laid down in the first place. How can I be expected to live my life as a functioning Type 1 Diabetic and be a reliable worker, driver, citizen, and, hopefully one day, a reliable mom, when the machines I rely on to be 100% accurate, aren't even close? Please, consider ALL diabetics in your decision to change the accuracy of these machines -- not just those who have Type 2 Diabetes and can rely on a range on numbers instead of an exact figure. Make the decision to raise the accuracy of our test machines, thereby allowing us to raise the quality of our lives.

-Mary Rotman

p.s. Want to make a difference? Visit and search for Docket No. FDA-2009-N-0604 to leave your comments. Tell the FDA that 20% isn't good enough, and we deserve every chance to take the best care of ourselves.


March 15, 2010

Bike Rides, Work, & WIPs

Sorry it's been a few weeks since I've posted -- things have been a little crazy :) The short version is that things have been rather busy and I haven't always had access to my computer like I'm used to. The long version? Bike Rides, Work, & WIPs, oh my :)

Bike Rides
Some of you know that I have Type 1 Diabetes (basically, my body depends on an outside source for insulin since my pancreas hasn't worked since I was two years old. No insulin = very, very, very bad times for Mary). In any case, last year my hubby and I participated in the Napa Valley Tour de Cure for the first time... and we intend to do it again this year.

Thanks to some pretty awesome people, I'm already 20% of the way toward completing my $2000 fundraising goal for this year's ride, which is a pretty awesome feeling :) I'm hoping to meet my goal, and complete the 25-mile ride as a Red Rider, riding for myself and for everyone else who has diabetes, whether Type 1 or Type 2.

Things are finally starting to calm down at work after finishing up a crazy week of Ignite events which ended in a nasty cold for me. It's an awesome project though, and it's been amazing to see how quickly things have caught on in the last two years that I've been involved. Definitely a grass roots/community event, and fun to be involved in! So now it's back to the regular hecticness at work instead of that normal chaos combined with overall chaos ;)

The baby quilt is still coming along nicely, but I'm having a tough time deciding how to arrange the squares, which are all pieced together at this point. Now they're just sitting on our kitchen table... waiting for inspiration to strike and for me to find the perfect fit :) In the meantime, we haven't been able to invite anyone over, since we have no table to eat at ;) Thank goodness for a coffee table and couches to eat at! :)

Maybe you guys have a better opinion of it than I do... fresh eyes and all, you know?